Abstract：Objective: To know the quanlity of life, coping style, social support of the parents of the children with CP and the state of these children, analyze the impact of the children with CP in different motor function states to the quality of their parents,life, in order to provide some evidence for the government making health policy which improve the quality of their parents,life. Methos:Randomly sampling 200 parents with Cp children in Pediatric rehabilitation center from March to June in 2012. The investigators which have gained special training guide these parents filling the questionare. After deleting the non-integrate ones, there are 188 parents according the standard.results:The quality of these parents (F=2.806,p=0.027)and he daily life (F=2.562,p=0.040)in different motor function states are significant. The quality score of these parents and the daily life score in first grade,second grade, third grade are higher than the fourth grade and the fifth grade. The pressure score of these parents with the fourth grade of function states children is the hightest(F=11.856,p=0.018) .The anxiety score of these parents with the fifth grade of motor function states children is the hightest (F=11.446,p=0.022).Conclusion: Now,most children with CP could be treated systemtic in the early stage, and their parents could do it actively. However, they need more help in life and relatively information, need the attention from all the social. Especially to the parents with the forth or the fifth grade children in motor function, they need more support in mental and policy.
罗煜,王鹢超,晏连英,华新军,罗姣,黄美华,刘丹. 脑瘫患儿不同运动功能状态对其父母生活质量的影响[J]. 实用预防医学, 2014, 21(10): 1183-1186.
LuoYu, Wang Yichao, Yan Lianying, Hua Xinjun, Luo Jiao, Huang Meihua, Liu dan. The impact of the children with cerebral palsy(CP) in different motor function states to the quality of their parents' life. , 2014, 21(10): 1183-1186.
[1] [M].北京:人民卫生出版社,2009:1-16. [2] 脑瘫患儿父母与其他患病儿童父母的自觉自我效能比较[J].广东医学,2010,31(16):2151-2152. [3] [4] [5] 脑瘫患儿家长常见心理问题及干预对策的研究现状[J]. 中国康复理论与实践,2011,17(5):401-403. [6] 同步健康教育对小儿脑瘫运动功能康复的影响[J]. 徐州医学院学报, 2013,33(6):410-412. [7] Fleischmann A. Na rrat ives published on the internet by par ents of children with aut ism: what do they reveal and why is it im po rtant [J].Fo cus Autism ot her Dev D-I sabil, 2004, 19(1) : 35-43. [8]
2014, Vol. 21 
